Share Your Story…

This post is for you, the visitor, to share your own story. Tell me how you relate to my posts. Tell me what challenges your facing at the moment. Tell me what has helped you. Tell me how you feel. It’s up to you. I’d love to hear from you. You never know, what you have to say might help someone else in some way.

Wishing you Health & Happiness

Svea

The creative juicer is all blocked up…

I’m feeling restless. TV doesn’t hold my focus like it used to. I can’t concentrate on it, whatever it is. I need to create something. I see others creating and I feel inspired, or motived by them. Creating is such fun. It makes you feel useful, like you’re doing something meaningful. It makes you feel alive.

That’s what I want to feel. But I don’t. There’s no creative juices flowing. The creative juicer is all blocked up. I’m not sure with what. I feel like I’ve been devoid of creative thoughts for so long. It’s true, I do feel blocked.

I don’t know which creative genre to dip my fingers into. I don’t feel especially drawn to anything. I’m not inspired to work on my portrait photography; painting and sculpting don’t attract me either. I have been looking into doing some acting workshops again, to help get my creative language back. It could help free me up.

Then there’s writing and film making, but I just feel like I have nothing to say. Nothing I want to say. Nothing of significance.

Yet my ego longs to be recognized for something. Well, that might not be such a surprise. I am 33 and have achieved little. There is a capable and creative person in me somewhere that wants a chance to be great. She doesn’t know how, and I don’t know how to help her.

I have always, at least in adulthood, been a bit of a drifter, changing my focus from interest to interest. Having lots of ideas about what might be fun to do, but somehow never anchoring to any of them.

The thing is that, once my interest wanes for any particular endevour so does my inspiration, and without inspiration I just can’t function properly. I can’t force it.

There you go. I just got distracted, and now I’m lost. I felt like I was on the cusp of something profound, and now my brain’s mush again.

I need an inspired creative project to work on, to drive my very existence. Writing is a good start. But you need discipline, don’t you. I don’t have much. I need to work on that.

There are too many menial thoughts in my head, everyday stuff I need to do or remember. I want to rise above them and float on a cloud of creativity and vision, suspended, hovering just above my mind. I can see myself beginning to rise in consciousness, only to be distracted by sticky thoughts, clinging to me like post-it notes.

Take me now, take me up, up and away. It’s like running up a staircase made of a billowy fog, no grip to push me forwards and upwards. It’s one step forward, one step back. Like some sort of pathetic dance, with two left feet. Nothing really happens. Nothing is ever really achieved. I stagnate in the moistness, and grow sluggish from the weight of the fungal blanket covering me.

Move. Just move. Do something to upset the stillness. Anything. Write, dance, sing, run.

My mind is always plagued by dichotomy. I’m always in two minds about things. No, not indecisive. I’m good at decisions. I know how to decide. But if the inside of you is two different persons all the time, who do you follow? Especially when both are bossy. The umpire in the middle has to call the shots. I don’t have an umpire. The two bossy boots fired him. They didn’t agree with any of his calls.

Rediscovering my lost intentions

I really don’t know where to start. I haven’t written in so long. I haven’t really felt anything in so long. I recently, well a few months ago now, decreased my antidepressants. I felt fine on them, not depressed at all. But my new doctor and I decided to try decreasing the dose so that I could start taking some nutritional supplements instead, to try and increase seratonin production naturally. Things like 5-HTP, Taurine and Theanine.

So I did. I’ve actually halved the dose, not immediately, but slowly. And I did notice a difference. A quite notable difference. Yes I now feel depressed on and off. The supplements have started to work though I think because it’s less of a depressed feeling and more of an ability to feel things again.

I hadn’t realized it but I actually had stopped feeling things. People sometimes say that antidepressants make them numb emotionally. I never experienced it that way. It just made me feel normal. It helped me to cope with being unwell for so long. I would be in the depths of despair if I didn’t have the support of the antidepressants (which is Zoloft for those wondering). It’s been a life saver.

But it has actually stopped me from feeling a lot of things. Not the day to day ups and downs, getting annoyed with things and people or being happy for a friend, having a laugh. All that was still there, but it did stop me from thinking about my life as a whole emotionally. I didn’t know who I was any more. I didn’t know what I wanted from life. I had stopped dreaming about what life could be like. I didn’t know what was me and what I wanted.

It had been too painful thinking about those things anyway. But now as I was starting to feel things again, both good and bad, I couldn’t ignore it, or sweep it under the antidepressant rug.

At first I felt devastated and panicked. I’m 33 years old, and have been unwell for most of my adult life. I haven’t been in a relationship for 7 years. I live with my mother whom I am financially, physically and emotionally dependent on. I have no assets, no savings, no superannuation. I have no career. No husband, no children. I allowed myself to feel the void of all this. My fear that it was going to be too late for me soon to have children. To have children I need a husband, to have a husband I need to find someone I love and adore who loves and adores me, to find that I need to be the sort of wonderful, vibrant, positive, adventurous and well rounded person that my perfect man would fall in love with, and to be that person I need to find her, and to find her don’t I need to be healthy and well?!

I realized that I actually used to be that person, but that I haven’t seen her at all for a good two years or so. Not since I went overseas in 2010 and had a massive relapse. That is part of what is so terribly devastating about fatigue related conditions. You lose yourself in them. Why? Because it’s near impossible to be vibrant, bubbly, excited, fun, happy and adventurous when you are chronically exhausted. Because when you are exhausted you can’t think clearly, you feel stressed, you can’t cope with pressure or noise or crowds or people in general, you physically don’t have the energy to “be out there and live life”, because the little tiny bit of energy you do have you have to ration ever so carefully for things like having a shower, preparing a meal, eating that meal, paying the bills and other chores that just can’t be avoided. Social occasions scare you half to death, despite the fact that your natural true healthy self is a total social butterfly, because you think about the many disasters that could happen if it’s not all planned down to the detail. How much energy will you have in your energy bank for that day? If it’s in the evening, do you need to avoid your usual daily chores for that day to save up some energy? Will there be something there that you can eat, that fits within all your various food intolerances? Will you have enough energy to talk to everyone? Will people think you’re weird if you suddenly leave for a 20min toilet break so you can chill out and reset and regain some energy? Will the noise of people talking or music be too much for you to handle? And then the worst one of them all, What will you answer when people ask you what you’ve been up to lately? “Oh, nothing much” you’ll coyly reply.

“So where are you working now?”

“No-where, haven’t been well enough to work since 2006”

“Oh…” they awkwardly reply. “…so what have you been doing?”

“Absolutely nothing”.

“Gosh, that sucks…. So, you married? Kids?”

“Nope, not well enough to date I’m afraid….. But still hoping to have kids…. one day…”

“ Ah…So where are you living now? Didn’t you used to live in Campbelltown?”

“Yep, still living with my mother.”

“Oh….”

That’s pretty much the extent of your conversation skills these days anyway, because you don’t do anything but watch TV all day everyday, other than nap and do some chores, so you have absolutely nothing to talk to people about. You can only talk to people about TV for so long before they start to think you have no life, which of course is true. You don’t.

For last New Years Eve I went to a friend’s party and this is exactly how my fears were realized. Needless to say, despite my best efforts to stay positive and stick it out, it was not a fun night!

I’ve been looking for motivation, for the greater part of this year. I’ve started seeing a new doctor who seems very good and I’ve finally only just two weeks ago started chelation therapy for heavy metals (mainly mercury and lead we think). I first read about heavy metal toxicity around February – March this year, and it’s taken until now, October to finally begin the therapy. I’m using Andrew Cutler’s protocol with DMSA, and in a couple of months adding ALA (Alpha Lipoic Acid).

I am hoping that this is the missing piece of the puzzle that is my health. I should be full of renewed enthusiasm. But I just haven’t been. I’ve been struggling with staying on the healthy diet and taking all my various supplements. And exercise, well, who can be bothered when going to the mailbox is a struggle. When EVERYTHING is a struggle, how do you find motivation????

The thing is that it’s easy to stay positive when you can see improvements over time, however small. It’s also easy to stay positive when you haven’t been unwell for all that long. Even a year or two, you can still think things will get better. But when it’s been 6-7 years, and you’ve seen so many different doctors, in fact you’ve seen the best ones in your town, you’ve tried various different treatments, and you haven’t seen any real improvements for 2 years, it starts to get a bit tough to see the light. Keeping the faith, just isn’t that easy any more.

Despite how negative I’m probably sounding now, I just never give up, and I’m always trying new things. I recently decided that going to bed earlier and also getting up earlier would be good for me. But with no motivation I had to think of something that would actually work. I have a friend who is in a very similar boat to mine in terms of health and energy levels, and we decided we would go to bed earlier – together. So now we text each other at night as soon as we’re in bed, and it’s like a little competition to try and beat the other one to it. It’s also inspiring when I get a text from her at a good hour like 9pm at night. It makes me stop what I’m doing and gets me up and ready for bed.

In terms of getting up early, I knew a text wouldn’t do it. So I asked my father to call me in the mornings when he’s on the train on his way to work. He’s bossy and pushy and I knew I wouldn’t be able to brush him off. It’s also working quite well.

However no amount of nagging from my dear dad, was getting me moving physically. The thing that is doing that for me is my fear of an unrealized life. I was daydreaming about a recent celebrity crush, and I got to the point where I knew too much about him to believe that it was plausible for someone like him to be into someone like me. Both physically and mentally. Suddenly I had such a sinking feeling in my gut. I had effectively ruined my perfect crush. For someone like him, my ideal man, to be into me, I would have to be a vibrant, adventurous, full-of-life, positive, active and not to mention physically fit woman. I felt disappointed that that isn’t what I am, but then slowly realized that in fact that is whom I used to be. It is who I would be if I was allowed and able to be my true self. My healthy self.

I had always been so positive and hopeful about life, that things would work out great and that I would have an amazing life. That all my dreams would come true. But now I felt like my life was slipping away from below me. How was I going to have the perfect man, with the perfect relationship and the perfect children, when time was running out and I still wasn’t well???

That’s what made me decide I had to do something about it. I looked at myself and thought that I wouldn’t want to be with me. I had to find that vibrant, fun, adventurous girl again. I had to find her, and get her fit and healthy. Somehow.

I decided that I do want the perfect man, and the perfect relationship, and the children. I do want to be fit and healthy. I do want to go walking in the Swedish highlands. I do want to feel things. I do want to experience life. I want to live life to the fullest. I want to taste the nectar of life’s garden. I want to be moved by things I see and experience. I want to laugh and cry with joy. I want to feel what it’s like to be ecstatically happy and excited. I want to be able to go for a run, and feel invigorated by it. I want to feel in complete control and trust of my body.

I want to be gutsy and fiery. I want to be vibrant and full of life. I want to be fun and light-hearted. I want to be in love, with a man, with my own baby, and with life. I want to be a great mother and a loving and supportive wife. I want to care about people again. I want to care about being happy. I want to want things again. I want to want them with a passion.

I don’t want a mediocre life, I don’t want to settle. I want my fire back.

This brings me to the end of my rant, and a quote I once heard.

“The answer to How, is Yes”.

If you want something bad enough, just say Yes to it. Commit to it, and the How will reveal itself in time. As long as you have enough power behind your intention, as long as you scream Yes to it over the roof tops, and keep putting one foot in front of the other, you’ll move towards it. When you lose the intention and the fire, you lose your goal.

I had lost my intention. I had let it slip away. I had numbed it with antidepressants and TV. I had forgotten it was there because it was less painful that way, I thought. It was too painful to dream of things I felt I’d never have.

But that’s the thing about dreams and intentions. When they die, so do we.

I’ve rediscovered my dreams and desires, and reaffirmed my intentions. And that is a great start!

Health & Happiness

Svea

 

 

CFS and Creativity

It seems to me that the majority of people with CFS (and chronic illness in general) dabble in creative pursuits. I suppose that, in an attempt to feel productive, we must be creative about coming up with things we ARE able to do despite our symptoms and fatigue. That is a challenge. While we may feel unable to contribute anything meaningful that the rest of the world validates as such, following some sort of creative pursuit, no matter how small, can help us feel that we are not just taking up space. And at the same time it nurtures and comforts our souls of course.

Buying something that a CFS sufferer has make or created, is a wonderful way of validating their existence and showing them that what they CAN offer does make a contribution to the world.

Does anyone know of any online markets or communities specifically for CFS artists and crafters? It would be great to have all of them in one place, wouldn’t it?

Svea

Glutathione update

Well, I have continued using the Glutathione patches. In fact I wear one almost everyday. And it’s really working well. I have more energy and more even constant energy throughout the day, I don’t need to rest as much, and as for napping, I haven’t had to do that at all. I have more stamina, and if I do something that tires me out, I recover much quicker.

I’m still reluctant to do any exercise. If I go for a very gentle stop and start walk someplace beautiful like a park, then I feel fine, but if I walk down to the shops for some grocery shopping, (a 3 min walk each way) then I do feel that unpleasant exhaustion when I get back, and I need to rest. By rest I mean sit down on the couch for a while. However, while it used to take me 30-60min to recover from such a walk and I’d be flat for the rest of the day, now I recover in 10-20min and then feel fine. So it is a very noticeable difference.

In general I just don’t have that disgusting exhausted sluggish feeling much any more. I do without a doubt attribute this to the Glutathione patches.

If there’s anyone who’d be interested in trying the Glutathione patches, please let me know. I’d really like to follow the progress of anyone that does and report the results here.

To your Health & Happiness,

Svea

Glutathione patch detox

My mother has started the Glutathione detox that you should do when you first start using the patches.

It’s not like a normal detox when you have to watch what you eat etc. The starter detox involves using the Y-age patches which include the Glutathione patch for day time and Carnosine for night time. As well as the Energy Enhancer patches also during the day placed on a different specific acupuncture point every day of the 5 day detox cycle. This 5 day cycle is repeated 3 times with two days off in between each cycle. This is to ensure the entire body and every organ and system in the body is detoxed at the start in order for the patches to be more effective.

During this 19 day detox you may not feel the benefits of the patches. In fact you may feel worse, as with any detox. You may also not feel any different at all. This does not mean that the patches are not working. They may just be focusing on an area of the body that is less noticable to you. Having said that, I felt immediate results with the patches when I did the detox (though I cheated and only did two cycles).

My mother too, has been feeling better rather than worse. She is today on her fifth day of the first cycle. She has been feeling more energetic and as I always say, more even constant energy throughout the day.

I will of course continue to track her progress. If there’s anyone who’d be interested in trying the Glutathione patches, please let me know. I’d really like to follow the progress of anyone that does and report the results here.

To your Health & Happiness,

Svea

Energy Enhancer Patches

I mentioned recently that I would focus a little more on the Energy Enhancer patches to see if they would work for me as well as the Glutathione patches.

Well, so far I have to say that they don’t seem to be doing much for me. However, that doesn’t mean they’re not working. What the Energy Enhancer patches do is help the mitochondria with energy production and with things life Chronic Fatigue, Mitochonrial disfunction is quite common. So although I may not feel any different, the patches may still be helping.

At the moment I’ve stopped using them but I will be seeing Dr Kate Perkins soon and will have a chat to her about this to see if there is something I may be doing wrong.

To your Health & Happiness,

Svea

Glutathione patch – Yes, it does work!

In my last post I promised that I would knuckle down and really give the Glutathione patches a fair go. So I began my renewed efforts yesterday. I got out of bed early enough to feel it worthwhile using a patch and I drank a couple of glasses of water. I decided to try a new position for the patch, so I put it on the sternum, in the center of the chest. I usually always wear it on acupuncture point CV6 which is about 2 inches below the navel.

It was an unusually busy day for me. I did lots. I visited a friend for a couple of hours with my mother, and then we drove to a new shopping centre, where I had been told there was a great butcher that does free range and gluten free sausages. We spent a good couple of hours doing the grocery shopping. When we got home in the late afternoon, I didn’t stop for a rest. Instead I jumped straight onto the computer again for at least a couple of hours, probably more. I still felt great. Then I helped with dinner, and after dinner, sprawled out on the couch in front of the TV around 9.30pm I still felt OK, rather than that sleepy slump you get after the evening meal. I still felt reasonably perky.

The biggest difference I could notice was that my energy levels were definitely higher, although I wasn’t hyperactive at all. My stamina was better, I didn’t tire as quickly, and that is a big deal. And finally, my energy levels were much more even throughout the day, rather than fluctuating up and down constantly.

So there you are, my first day back on the patches was pretty damn good.

Health & Happiness,

Svea

Back to the Glutathione

Some people have been asking me about the Glutathione treatment I’ve been testing on myself. So I thought I’d write a bit more about it. Before I begin I must remind you that I am not a qualified health professional or medical doctor. I am speaking about this as someone who is using it.

First of all I’m still testing it on myself. I have not drawn any clear conclusions yet. I really haven’t experimented with it enough yet. You might ask why that is, since it’s supposed to work so marvelously. Well, you need to drink a lot of water for the patches to work. You need 4-6 glasses minimum per day, but 8 would be better. And you shouldn’t apply the patches until you’ve had two glasses of water.

I have found this to be the hardest part, as I don’t necessarily feel like drinking that much in the morning. Hence, I only use the patches on days when I am hydrated enough.

I definitely think I feel better on days I wear the patch, and it helped me to not catch the flu of my mother and brother whom I was looking after when they were ill. I will continue to update my own progress with the patches, but keep in mind that my friends including doctors I know and respect here in Adelaide, have had great results with the patches.

So, as you may already know Glutathione is one of the most important antioxidants. In fact it functions in our body as the master antioxidant. It’s often low in people with Chronic Fatigue and chronic illness in general, and certainly decreases with age. It has been advertised as an anti-ageing supplement and for youthful looking skin, but it is in fact turning out to be quite a miracle worker. Many scientists now believe that how long we live is directly proportional to how high our Glutathione levels are. Some of the actions of Glutathione include supporting the immune system, improving overall health, neutralizing free radicals which case cell damage, promoting the release of stored toxins ie a detoxifying action, protecting your vision, and helping turn carbohydrates into energy, just to mention a few. It’s also useful for a long list of serious and common diseases. I use them as they are supposed to make you feel mroe energetic and just better. I will not go into this in any more detail as there are endless websites and about 80,000 research studies describing its wide benefits. Just type Glutathione and whatever problem you’re having into google and you should find something. A good place to start for general information re Glutathione is http://www.glutathionediseasecure.com/

So Glutathione is crucial for optimum health, and many people are deficient in it. What can we do? You’ll find a number of different suggestions online as to how you can best boost Glutathione levels, including various supplements. The problem is that oral Glutathione supplements don’t work well enough to significantly increase your levels. Why? Because it is just not able to be absorbed by the body.

Some health professionals know this, and therefore advocate boosting your levels by taking its building blocks Glutamate, Glycine, and L-Cysteine, and eating foods that are naturally rich in these. But trying to boost levels orally is always going to be a bit of a problem as we simply do not absorb things that well through our digestive systems, especially those of us who have a digestive problem such as Irritable Bowel Syndrome etc.

Well there is a new way to boost Glutathione levels, and it works amazingly well. It is by using a Glutathione patch. Research done on this patch has shown that it can increase Glutathione levels in the body by 300% in 24 hours. Now, there is absolutely nothing else out there that will do this. Oral supplements will only boost your levels by something like 25% over a 3 week period, and even that is debatable.

How does this patch work I hear you ask. It uses advanced nano-technology to stimulate acupuncture points in the body. A photon of light stimulates the acupuncture point and the body’s own resources achieve the effect. It’s not a transdermal patch, so nothing enters the body. There are no drugs involved. It can even be used on animals. Many clinical studies have been done to ascertain the effectiveness of these patches.

If you want to find out more about these patches please visit http://www.lifewave.com/oliviasadry

When you’re at this site click on “Products” down the bottom and you’ll get a menu on the left side which will give you more info including research. If you want to try the patches for yourself go to “Buy Now”. There are a couple of different ways of getting a better price for the products. “Preferred Customer” will get you $10 off which is really good, but if you want $20 off you better ask me to show you as I’ll need to explain a few things to you.

They also have 5 other patches that are equally fantastic. One is for Carnosine, one is the Energy Enhancer used by 300 Olympic athletes from 11 countries in the Beijing Olympics. Then there is IceWave which is amazing for pain relief. And a few more. Visit the site to get the info, or ask me a question.

If you have any questions at all, please don’t hesitate to ask. I’ll be happy to help. And if you do try the patches please let me know how you go. I may be able to help you with some tips on getting the best use out of them.

Health & Happiness,

Svea

Calling all spunky CFS sufferers for advice…

I was reading some CFS related posts the other week, when I came across someone talking about their very supportive husband. It really made me think about relationships and CFS (and chronic illness). I recently turned 30, (and no, I haven’t held a celebration yet, as I’ve been too tired to orchestrate any such event), so my maternal clock is ticking. I would really like to have children in this lifetime. Sure there are other things I want, like a career and a social life, and so on. But the issue of children and a family of my own is really a little bit more urgent, as I clock up the years.

Why am I telling you this? Well, I’ve been single since 2006 when I became really unwell, and unable to work. For the first two years since then I couldn’t even think about the possibility of dating. Can you imagine, no energy and trying to date? In the last year though I’ve started thinking about it. But I’m still only really well enough to spend a few low key hours chatting to someone or being out (during the day). I’m tired of waiting for my body to recover and have more energy, before considering dating again. What if I don’t get significantly better?

I’m not looking for someone to date really. Essentially I want to find a life partner.  But how  on earth do you do that when you are the way I am? I am not only talking about the physical limitations and actually being able to go out. I’m talking about having something worthwhile to offer a potential partner. I can’t work, I can’t do much around the house, often I’m not very vivacious, I often have to cancel or reschedule things, I can’t handle too much noise or too many people, or strong smells, I don’t eat certain things like gluten which makes me “difficult” when eating out, I’m not able to exercise much so I’m a couch potato and look like one too. The list goes on as to why you shouldn’t date me. So when I happen to meet a nice eligible man, (which is rare in itself as I’m rarely out), and we get the basic questions out of the way (such as, What do you do for a living? – Nothing, Where do you live? – With my mother, What do you drive? – My brothers beat up 82 Honda Civic, What do you do for fitness? – Walk to the letterbox), there’s not really much of an incentive for him to stick around. And if he does, you’ve got to question why he’s aiming so low. So it’s a bit like “IF he wants to stick around he’s probably not my type of go-getter anyway”.

So what do you do? That is what I am asking YOU! I am genuinely stuck on this issue. Are there CFS sufferers out there with wonderful partners? More specifically are there CFS sufferers with supportive partners, who met while the person was already unwell. This is what I’m curious about. I understand if you are married to someone and they become unwell, you’ll stand by them. But do I stand a chance meeting a good man while I’m unwell, or not 100%?

I’d like to hear from people who have. If you are in a relationship that started while one of you was unwell, let me know. Tell me how it happened and how you feel about it, how your partner feels about it etc. Write me a line.

Hoping to hear from lots of you,

Health & Happiness,

Svea